Today is the day that we aim to promote awareness and understanding of Down syndrome and related issues ... and to mobilize support and recognition of the dignity, rights and well being of people with Down syndrome.
Today is the day that we honor our girls ... and all of the other fabulous people with Down syndrome in this world.
In honor of this special day and my love for networking with other completely-inspiring-super-awesome parents of children with Down syndrome ... I present to you Real Life | Down syndrome.
Real Life | Down syndrome is a comprehensive look into raising a child with Down syndrome ... for the parents, by the parents. In other words, it brings the stories of parents across the world to one place. It is broken down into three main categories -- birth stories, life stories and medical hurdles -- allowing parents ... no matter where they are in their journey ... to find other parents that have been in their shoes.
Someone to identify with ... someone to contact when you have questions.
Disclaimer ... I am still perfecting text and tweaking things here and there ... I welcome your suggestions!
- In order to follow each of the three main categories via google reader or other feed, you must separately follow each one. Annoying, I know -- I'm sorry! That is just the way I had to set it up for now and until I have time to make it better, this will have to do.
- The families tab will be updated as needed ... and it is far from complete as it is. So ... if you are not yet listed on the blogroll, please get me your child's name, your blog name and your blog URL so that I can add you.
- The resources tab will also be updated as needed ... and it is also incomplete at this time. If there are any resources that you would like to see added, please let me know.
- The birth stories, life stories and medical hurdles tabs will be updated several times per week. I need your stories! Please contact me for more specific information.
Love it! Great idea!ReplyDelete
Here's our info....
child's name: Jack
your blog name: Happy Jack
your blog URL: http://thegreskofamily.blogspot.com/
Child's name: Addysen
blog name: The Heflin Family
You're awesome Bethany!! I love it!!!!ReplyDelete
Great idea Bethany! Here's my info:ReplyDelete
Child's Name: Andrew
Blog Name: Our Wigglebugs
The site looks awesome ... Really incredible Bethany!ReplyDelete
Feel free to add our info and I'll get a story out to you ... I am supposing under "medical issues",don't you think?
I LOVE the new site Bethany and think it is such a great idea!ReplyDelete
I am working on my story of Joel and will get it to you soon!
Can I send you some links for the resources tab from Canada? I noticed that you have one for Ontario but there are some from Alberta that I can send to you too.
LOVE the new site! HOw awesome! here's our infoReplyDelete
child's name : Bree
site: Enjoy the Journey
ok this might be a dumb question, but do both your girls have ds?ReplyDelete
Kecia ... LOL! Yes, they do. :)ReplyDelete
Yes Heidi, send me whatever you have! Are you from Canada? Why did I not realize that? LOLReplyDelete
Oh and Kecia, I know you asked what Nika's story is a couple weeks ago. I need to complete our "about" page, but the short story is we adopted her from Russia in 11/08 after we had Payton. :)
Simply amazing, Bethany!! You never cease to amaze me with your talents and just how do you find time to do all this??ReplyDelete
I'd love to send you Megan's story...
Our info is:
Blog: Loves Me Some Sugar and Spice
What a great idea. Thanks for taking the time to do this for us.ReplyDelete
Our info is:
Blog: Let Your Troubles Roll By
You. Are. Awesome.ReplyDelete
This brought me to tears!!!! Bethany...this is so fabulous! ...and I love that we were already on the families list ;)...I love that our little lives collided because of our children...and so glad that so many other families will find encouragement through not only your blog but through the Real Life/Down Syndrome sites, yahooo!
Bethany! I love the site! What a brilliant idea! :) And yay! I'm already on it lol! :)ReplyDelete
Beautiful site! You're amazing. I would be honored to contribute Goldie's birth story.ReplyDelete
congratulations for this new project =)ReplyDelete
Blog: We may not have it all together, but together we have it all.
Great idea Bethany!ReplyDelete
Love the picture of your girls driving! They look like teenagers already :O)
That is awesome!!! Here is our info...ReplyDelete
Childs name: Avery
Blog Name: My Girls
what an amazing idea :o)ReplyDelete
happy world down syndrome day!!!!
Great new site! I love the focus on real life. I remember when Macy was first born the thing that helped me the most was seeing families just living their real and normal lives. Their world didn't end, lol! That is mostly how I see it now, we just do our thing, like we did before and it is great!ReplyDelete
The site is amazing!! It is exactly what I had been looking for when we got our diagnosis!ReplyDelete
Ok so I am so intrigued by your two beautiful girls!! I want to know the story...did you adopt one of them? It makes me want another girl with DS in my home!!If you want you can email me a little about your story...email@example.com. Darling Darling family!!!SO glad I found you to inspire me!ReplyDelete
Love love love LOVE it! Thanks for including us on your list! I would love to send you a little write-up about Rylee at some point! Thanks for doing so much to share our journey of Ds with everyone!ReplyDelete
WOW! What an amazing site! It's so informative, I can see it being a real place for community, for sharing, for learning, for inspiration! AND... it's just beautiful! Well done and THANK YOU for putting this out there!ReplyDelete
BTW... do you have a button/link that I can put on my blog?ReplyDelete
Bethany!! I LOVE LOVE LOVE it!!! Yes, ditto Loren - I'd love a button as well - if you have one : )ReplyDelete
Ah, what a wonderful idea!!!!
Beautiful site, Bethany!!! I'll send you some stuff after I edit it (such as a story).ReplyDelete
what a great job you're doing w/the website! I think I STILL need to get you some pics of Kayla for her link/story! oops!ReplyDelete
Forgot to tell you Kayla's bday info - 7/2003.ReplyDelete